Jkirk

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My Active HugeHeart

I have changed my lifestyle now that I am on my Left Ventricular Assist Device (LVAD) by exercising more. I try to walk a lot during the day by setting a step goal and distance goal. So how do I keep track of the steps and distance? With my activity tracker. Activity trackers are very popular now and there are so many trackers that I am not going to say that one is.. Read More

My Assisted HugeHeart

I have not posted in a very long time, please forgive me. I need to share my recent experiences to provide information to everyone and also to provide hope to those that have a form of heart disease. I am currently on a Left Ventricular Assist Device, which was life saving for me. I was not feeling very well in the summer/ fall of 2013, I was feeling tired, breathless, and had pain.. Read More

Huge Heart 2007

In 2007, I plan to do more research for my condition and build on the information that I already have on Huge Heart. I would like to write a section on defibrillators and eventually start a forum for visitors to ask questions. If someone has a suggestion please e-mail me, obviously I would like to make the most user-friendly website that I can. My last post was almost two months ago–I just took.. Read More

A Successful Surgery!

I am glad to be out of the hospital and that the surgery is finally over. The surgery took about an hour and a half–the doctor implanted the ICD and tested it during the timespan. He pushed my heart rate up to 200 bpms and the device kicked right in. The normal position of the device is in the hollow of the left shoulder, the doctor planted my device closer to the middle.. Read More

The Night Before My ICD Implant

Today was a normal day, I did not really think too much about my procedure. I guess you can say I am anxious to get it over with. I am more nervous about how I will feel with the device in my shoulder and how I can’t overexert my arm for a few days after the procedure. If I move my left arm too much it could knock a wire out and then.. Read More

A True Hero

My last entry was about two weeks ago and it was written with the assumption that I would have my ICD implanted in my chest within two weeks–my procedure was delayed due to my grandfather’s passing and I will now have my procedure late next week. Last week was a very hard week for me, I lost someone that I was very close to. This entry is going to be dedicated to my.. Read More

Huge Heart Blog/ICD Implant

I have decided to start this blog to allow patients and visitors to maximize their experience while searching for answers on HugeHeart.org. I felt that writing a blog of my experiences and my thoughts about living with Cardiomyopathy would give outstanding insight to a world that is not that familiar or experienced with this disease. It is not only good to provide such valuable insight but it is very therapeutic to write about.. Read More